In
Search of a Life-Saving Match
Jessica Chang
Donating
blood may have become a common occurrence, but for Asians, bone marrow donors
are in desperately short supply Sheri
Olmom first detected something was wrong with her helth when she was pregnant
with her third daughter. The doctors told her it was anemia, and suggested she
consider an abortion. Olmon refused, and Harper was born without complication.
Olmon received a stem cell self-transplant to beat the cancer. It was
unsuccessful; she needed an outside bone marrow donor. But her chance of
locating one is extremely slim because she is half Japanese and half Caucasian
“ If I were (pure) Asian, I think I might have a better shot at finding a
match.” She says. “But because I’m half, the variables increase so greatly
that even my sister and brother don’t match me.”
The difficulty in finding a match is directly related to genetic
“marker” found I an individual’s blood cells. These markers are inherited
characteristics such as eye color and hair type. The greater the chances are of
a successful transplant.
Historically, the blending of ethnicity’s within the APA(Asian Pacific
American)Population has not been very common. Therefore, the
markers are very specific for each racial group. However, in cultures
such as the United States where interracial marriage is becoming more common,
the genetic pool becomes highly diluted making it nearly impossible to find
someone with matching markers.
For Olmon, the markers must be specific to both her Japanese and
Caucasian genes. Thus, the number of potential donors is very small.
“If
I were to find a donor. I would be floored.” She says. I would be completely
in shock.”
Race is not the only factor that makes Olmon’s search for a match
difficult. More than 4 million people are listed on the National Marrow Donor
Program (NMDP) registry, but only 6 percent of that number are APAs, In a
January 2000 study conducted by the NMDP, only 268 of the 9,335 marrow
transplants from a non-relative were for APA patients.
But there is hope. Asians for Miracle Marrow Matches, or A#M, is a
non-profit organization based in Little Tokyo dedicated to helping APAs find
potential bone marrow donors. The group was formed in 1991 with the hope that if
the number of potential donors increased, there would b a greater chance for APA
patients to survive life -threatening blood diseases. Since its founding A3M has
added more than 60,000 APAs to the NMDP registry through its marrow donor
drives, which are conducted across the nation.
Ron Balbuena fist became involved with A3M at one of these drives. He was
a fifth year senior at UC Berkeley when he volunteered to have his blood tested
and marrow type confidentially listed on the NMDP registry. What he did that day
would ultimately change his life.
On Sept. 11, 1997,Balbuena went to Alta Bates Hospital in Oakland,
Calif., to have bone marrow extracted from his hip. Nine hours later, he was
released with an aching lower back.
Although he admits the ordeal was painful, he doesn’t want the fear of
discomfort to prevent potential marrow donors from contributing.
“You have to compare the pain that you’re going through to what this
patient’s family and what the patient himself went through, and it doesn’t
compare,” Balbuena says. “I’ll go through a little bit to give this boy no
pain for the rest of his life.” Balbuena doesn’t know much about the boy who
received his bone marrow except that he is 11 years old and lives in Malaysia.
Though he has communicated with the boy and his family through cards and a phone
call, Balbuena feels a close connection to the young stranger to whom he gave a
second chance at life. He plans to meet the boy and his family sometime this
year and wants to give them this message.
“ I might have helped this boy have a full life, extend his life, or I
might have saved his life, but this boy did a lot for me,” he says. “It was
mutual, this experience. He gave me so much. When I see him, that I will tell
him how much I appreciated him giving the gift of life for me.”
Meanwhile, Olmon appreciates the gift of life while she can. After four
years of different treatments, including acupuncture, herbal medication and
chemotherapy, her cancer has gone into remission. But she never knows when it
may come back. Her husband and three daughters have been supportive from the
start. Sydney, 10,Milan 7, and Harper,4 may not be old enough to fully
understand what their mother is going through, but their love and energy helps
Olmon stay positive.
And while the chances may be unlikely, she doesn’t give up hope that
she’ll find a match, the way the boy in Malaysia found Balbuena.
“I’m pretty much living day to day, appreciating what I’ve got now.
I don’t look too far in the future,” she says. “ I find that things are
pretty good right now so I just kind of live in the present as much as I can.”
Asians
for miracle Marrow Matches
For
more information on bone marrow transplants, donations or marrow donor drives
please call 1-800-A3M-HOPE. Or email a3m@ltsc.org.